Secure-SCD

About

The SECURE-SCD Registry would not be possible without the contribution of reporters worldwide. Thank you for taking the time and helping sickle cell disease community during this global crisis. We would like to acknowledge the following institutions and individuals who contributed Case Report Forms to the registry.

INSTITUTIONS

  • Ahepa University Hospital
  • Akron Children’s Hospital
  • American University of Beirut Medical Center
  • Andrée Rosemon Hospital
  • Arkansas Children’s Hospital
  • Augusta University Health
  • Aurora Health Care
  • Barnes Jewish/Washington University
  • Bethesda Medical Center
  • Boston Children’s Hospital 
  • Boston Medical Center
  • Brigham and Women’s Hospital
  • Brookdale Hospital Medical Center
  • Buffalo General Medical Center
  • Capio S:t Görans sjukhus
  • Center for Blood Disorders at Augusta University
  • Centre Hospitalier de l’université de Montréal
  • Children’s Hospital of Wisconsin
  • Children’s Minnesota
  • Children’s Healthcare of Atlanta
  • CHU Sainte-Justine
  • CHEO
  • Cohen Children’s Medical Center
  • Columbia University Medical Center
  • Community Cancer Institute Fresno
  • Compassion Center Congo
  • Connecticut Children’s Medical Center
  • Cook Children’s Medical Center
  • Dell Children’s Medical Center
  • Detroit Medical Center
  • Duke University Medical Center
  • Emory University
  • Escola Paulista de Medicina/UNIFESP
  • Foothills Medical Centre/University of Calgary
  • Franciscan Alliance
  • Froedtert Hospital Sickle Cell Program
  • General Hospital Dutse
  • General Hospital Saint Martin
  • Hamdala Medical Centre
  • Hasbro Children Hospital Rhode Island 
  • Hôpital Erasme
  • Hôpital Universitaire de Genève
  • Hôpital Tenon
  • Hospital Infantil João Paulo II
  • Hospital of Basse-Terre
  • Hospital of the University of Pennsylvania
  • Hospital São Rafael
  • HU-UNIVASF
  • Indiana Hemophilia and Thrombosis Center
  • Johns Hopkins Hospital
  • Lausanne University Hospital
  • Lifespan Cancer Institute/Rhode Island Hospital
  • Loma Linda Children’s Hospital
  • Long Island Jewish Medical Center
  • Lurie Children’s Hospital
  • Mary Bridge Children’s Hospital
  • McKenzie-Willamette Medical Center
  • McMaster University Medical Centre
  • Mercy Medical Center
  • Methodist Comprehensive Sickle Cell Center
  • Miller Children’s and Women’s Hospital
  • Montefiore Medical Center
  • Mount Sinai Hospital 
  • Nationwide Children’s Hospital
  • Nemours AI duPont Hospital for Children
  • Nemours Children’s Specialty Care
  • New York Presbyterian Brooklyn Methodist Hospital
  • New York University
  • Newark Beth Israel Medical Center
  • NIH
  • Nizwa Regional Hospital
  • NYC Health + Hospitals/Queens
  • NYU Winthrop hospital
  • Ohio State University Wexner Medical Center
  • Oishei Children’s Hospital/Roswell Park
  • Oregon Health and Sciences University
  • OSF HealthCare Children’s Hospital of Illinois
  • Our Lady of the Lake Adult Sickle Cell Clinic
  • Pediatric Specialists of Virginia
  • PRISMA Health – Upstate
  • Rady Children’s Hospital San Diego
  • Rainbow Babies & Children’s Hospital
  • Riley Hospital for Children/Indiana University
  • Rush University Children’s Hospital
  • Seattle Children’s Hospital
  • Southern Alberta Rare Blood and Bleeding Disorders Comprehensive Care Program
  • St. Joseph’s University Medical Center
  • St. Jude Children’s Research Hospital
  • Sultan Qaboos University Hospital 
  • Texas Children’s Hospital
  • Tova Community Health
  • Tufts Medical Center
  • Tulane Medical Center
  • UBMD Internal Medicine
  • UCSF Benioff Children’s Hospital Oakland
  • UNC Medical Center
  • University Hospital of Guadeloupe
  • University of Alabama at Birmingham
  • University of Colorado
  • University of Illinois Chicago
  • University of Maryland Children’s Hospital
  • University of Maryland Medical Center
  • University of Miami/Jackson Memorial
  • University of North Carolina at Chapel Hill
  • University of Pittsburg Medical Center
  • University of Rochester
  • University of South Alabama
  • University of South Florida
  • University of Toledo Medical Center
  • University of Washington/Seattle Cancer Care Alliance
  • UT Health San Antonio
  • Vanderbilt University Medical Center
  • Virginia Commonwealth University
  • Wake Forest Baptist Health
  • Washington University in St. Louis
  • Weill Cornell School of Medicine
  • Yale

REPORTERS

  • Abena Appiah-Kubi
  • Adrienne Lee
  • Akshat Jain
  • Alexis Thompson
  • Alice J. Cohen
  • Allison King
  • Alyssa Cotton
  • Amy Mager
  • Amy Moskop
  • Amy Sobota
  • Angeli Rampersad
  • Anthony Akinbami
  • Anthony Villella
  • Arturo E. Ceniza
  • Ashley Harrison
  • Ashley Sherrod
  • Ayanna Baptiste
  • Bimpe Adesina
  • Bridgette Pierre
  • Caleb Stokes
  • Carol D Pierce
  • Caroline Hastings
  • Celia Grace Murnock
  • Charleen Jacobs 
  • Cheryl Mensah
  • Christian Kjellander
  • Christine Warner-Valentine
  • Cindy Varga
  • Clarissa Johnson
  • Courtney Thornburg
  • Curtis Owens
  • Dahlia Sano
  • Daniel Billings
  • David Gardner
  • D’Ann Pierce
  • Dawn Rabe
  • Deborah J Boger
  • Derrick Kid
  • Despoina Pantelidou
  • Deva Sharma
  • Donna Boruchov
  • Elizabeth Garforth
  • Elizabeth Roman
  • Elizabeth Yang
  • Emmanuelle Bernit
  • Erica Esrick
  • Erin Coyne
  • Ernest DeJean Jr
  • Eveline Gwaabe
  • Ewurabena Simpson
  • Ilene Friedman
  • India Sisler
  • Irem Eldem
  • J. Eric Russell
  • Jacquelyn Baskin-Miller
  • Jane S. Hankins
  • Jeanine Dumas
  • Jenai Jackskon
  • Jennie Law
  • Jennifer Abeles
  • Jennifer Rothman
  • Jennifer Williams
  • Jocelyn Mallard
  • John Strouse
  • Juan Rico
  • Judith Carbonella 
  • Julie Kanter
  • Kathryn Hassell
  • Kathryn Koch
  • Katie Cherenzia 
  • Kristina Landes
  • Ladan Usman
  • Laura De Castro
  • Laura Hardy
  • Lauren Beck
  • Laurent Cimasoni
  • Leigh Hunter
  • Liliane Alcântara de Azevêdo
  • Lisa Boggio
  • Lisa Redden
  • Liz Klings
  • Luciene da Cruz Oliveira
  • Lucyo Flávio B Diniz
  • Lydia Pecker
  • Malik Carter
  • Manisha Bansal
  • Marcus Carden
  • Margaret T Lee
  • Maria Stella Figueiredo
  • Marianne Yee
  • Marie Dominique Hardy-Dessources
  • Mario Peichev
  • Matthew Heeney
  • Maureen Achebe
  • Melissa Claar
  • Melissa Frei-Jones
  • Melody Pratt Palmore
  • Mica Ferlis
  • Mohammed Bukari
  • Morgan McLemore
  • Nadia Gabarin
  • Nancy S. Green
  • Narcisse Elenga
  • Nayf Edrees
  • Nicole Bohnker
  • Nina Anderson
  • Noura El Hariri
  • Olivia Arrowsmith
  • Ofelia Alvarez
  • Parul Rai
  • Philip Margiotta
  • R. Gentry Wilkerson
  • Rachelle Smith
  • Raffaele Renella
  • Rebekah A Beagles
  • Regina Macatangay
  • Roynetta Lloyd
  • Rhea M. Robinson
  • Sabrina Pink
  • Salam Alkindi 
  • Sarah Hall
  • Sana Saif Ur Refman
  • Seethal Jacob
  • Sherri Morris
  • Shoua Xiong
  • Silvianne Ngueya
  • Sophie Lanzkron
  • Sri Lakshmi Jamalapur
  • Stéphanie Forté
  • Stephen Nelson
  • Steven Ambrusko
  • Sucharita Bhaumik
  • Susanna Curtis
  • Suzie Noronha
  • Talesa Chartrand
  • Tarcísio Silva Borborema
  • Thomas Harrington
  • Titilope Fasipe
  • Tony Ngo
  • Tranaka Fuqua
  • Trinna Bloomquist
  • Trisha Wong
  • Trudy Sale
  • Valerie Cachat
  • Vanessa Howard
  • Vedrell Wyat
  • Ward Hagar
  • Yves Pastor

PROVIDERS

  • Abdullah Kutlar
  • Abena Appiah-Kubi
  • Adrienne Lee
  • Akshat Jain
  • Alan Anderson
  • Alex George
  • Alexis-Fardini Scylia
  • Alexis Thompson
  • Alice J. Cohen
  • Alicia Change
  • Aline Santin
  • Alissa Kahn
  • Allison King
  • Amma Owusu-Ansah
  • Amy Kinzie
  • Amy Moskop
  • Amy Sobota
  • Andrew Eisenberger
  • Angeli Rampersad
  • Anjulika Chawla
  • Anthony Villella
  • Arturo Ceniza
  • Ayanna Baptiste
  • Banu Aygun
  • Beatrice Gee
  • Caitlin Neri
  • Caleb Stokes
  • Caroline Cromwell
  • Caroline Hastings
  • Caterina Minniti
  • Cecelia Lela Calhoun
  • Chancellor Donald
  • Cheryl Mensah
  • Chibuzo Ilonze
  • Christian Kjellander
  • Cindy Leissinger
  • Cindy Varga
  • Clarissa Johnson
  • Cliff Takemoto
  • Corine Charneau
  • Craig Mullen
  • Curtis Owens
  • Deepa Manwani
  • Denis Soulières
  • Despoina Pantelidou
  • Donna Boruchov
  • Donna Brower
  • Douglas Collins
  • Elizabeth Kavugho
  • Elizabeth Klings
  • Elizabeth Roman
  • Elizabeth Yang
  • Elna Saah
  • Emmanuelle Bernit
  • Emily Meier
  • Erica Esrick
  • Ewurabena Simpson
  • Faiz Hussain
  • Farzana Pashankar
  • Felicia Wilson
  • Fleur Samantha Benghiat
  • Franklin Njoku
  • Hamayun Imran
  • Ilene Friedman
  • India Sisler
  • J. Eric Russell
  • Jacob Seethal
  • Jacquelyn Baskin-Miller
  • Jane Little
  • Jane S. Hankins
  • Jason Payne
  • Jeanne Boudreaux
  • Jeffrey Glassberg
  • Jeffrey Hord
  • Jennie Law
  • Jennifer Abeles
  • Jennifer Rothman
  • Jenny Kim
  • Jenny Shim
  • Jeremie Estepp
  • Jill Menell
  • Joddy Mafema
  • John Reagan
  • John Strouse
  • Joshua Field
  • Juan Rico
  • Julie Kanter
  • Karen Zimowski
  • Kathryn Hassell
  • Kay Saving
  • Kirshma Khemani
  • Kockhar Preethi
  • Ladan Usman
  • Laura De Castro
  • Laurent Cimasoni
  • Lee Hilliard
  • Lewis Hsu
  • Liliane Alcântara de Azevêdo
  • Lillian McMahon
  • Linda Shaffer
  • Lisa Boggio
  • Lisa Giordano 
  • Liz Hines
  • Luciene da Cruz Oliveira
  • Lucyo Diniz
  • Lydia Divialle-Doumdo
  • Lydia Pecker
  • Marc Schnapper
  • Marcus Carden
  • Madeleine Verhovsek
  • Manisha Bansal
  • Margaret Lee
  • Maria Stella Figueiredo
  • Marianna De Benedictis
  • Marianne Yee
  • Mario Peichev
  • Maritza Ruiz
  • Maryse Etienne Julan
  • Masood Ghouse
  • Matthew Heeney
  • Matthew Quesenberry
  • Maureen Achebe
  • Melisa Ruiz-Gutierrez
  • Melissa Claar
  • Melissa Frei-Jones
  • Michael Linenberger
  • Michael White
  • Michel Gowhari
  • Miguel R. Abboud
  • Mohammad Rashid
  • Mohammed Bukari
  • Monica Hulbert
  • Morgan McLemore
  • Nadirah El-Amin
  • Nancy Green
  • Nancy Robitaille
  • Narcisse Elenga
  • Nayf Edrees
  • Nidhi Bhatt
  • Nina Anderson
  • Nitya Bakshi
  • Nnenna Badamosi
  • Noelis Boizan
  • Nupur Mittal
  • Ofelia Alvarez
  • Dr. Paucaud
  • Parul Rai
  • Paul Kent
  • Paul Scott
  • Paul Swerdlow
  • Payal Desai
  • Philippa Sprinz
  • Prasad Bodas
  • Preethi Marri
  • Rachel Shepard
  • Raffaele Renella
  • Rafi Kazi
  • Rebecca Johnson
  • Refaat Abdullah Elsadek
  • Regina Macatangay
  • Richard Ho
  • Robert Irwin
  • Robert Mignacca
  • Robert Molokie
  • Robert Sokolic
  • Robin Miller
  • Salam Alkindi
  • Samantha Benghiat
  • Sana Saif Ur Refman
  • Sandy Kotiah
  • Santosh Saraf
  • Shalu Narang
  • Silvianne Ngueya
  • Simbo
  • Siva Yadlapati
  • Sophie Lanzkron
  • Stephanie Savelli
  • Stephen Nelson
  • Steven Ambrusko
  • Steven Kuerbitz
  • Steven Murphy
  • Sucharita Bhaumik
  • Susanna Curtis
  • Suzanne Saccente
  • Suzie Noronha
  • Tarcísio Silva Borborema
  • Thein Swee Lay
  • Thokozeni Lipato
  • Thomas Harrington
  • Thomas McLean
  • Tina Taylor
  • Titilope Fasipe
  • Trisha Wong
  • Wally Smith
  • Ward Hagar
  • Valerie Cachat
  • Yasser Wali
  • Yves Pastore

*If you are a reporter/provider on this list and you would prefer to remain anonymous, please email our team at covid.sicklecell@mcw.edu and we will remove you from this listing along with future publication acknowledgments. Thank you!